139 %
£6,950.00
raised of £5,000 target
by 70 supporters
Donate
Jeanette Davis avatar
Jeanette Davis

Jeanette`s Skydive Appeal....now taking donations for Hilary`s Afternoon Tea and Pauline and Jeanette`s Superhero Walk in Hyde Park.

Tandem Skydive on Aug 22nd for Amy and Friends because I want to help this wonderful supportive charity.

139 %
£6,950.00
raised of £5,000 target
by 70 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

 I am doing a skydive to raise money and awareness of Cockayne Syndrome (CS) for a registered charity called Amy and Friends who support affected families.

 My friends have 2 children who have CS .This leads to premature ageing and has  an average life expectancy of 12 years. There is currently no cure or treatment for CS.

 However, sufferers of CS have the hugest smiles, never complain and are a true testimony to what life is all about.

Thankyou for helping me help these children and families.                                                                                                   

 

 

Photos

6
  • Melissa, Fergus and Gwen
  • Amy and Julie
  • Amy and Friends Group +4

Supporters

70