I am doing a skydive to raise money and awareness of Cockayne Syndrome (CS) for a registered charity called Amy and Friends who support affected families.
My friends have 2 children who have CS .This leads to premature ageing and has an average life expectancy of 12 years. There is currently no cure or treatment for CS.
However, sufferers of CS have the hugest smiles, never complain and are a true testimony to what life is all about.
Thankyou for helping me help these children and families.