Celiac Disease Foundation drives diagnosis, treatment, and a cure to improve the quality of life for all people affected by celiac disease and non-celiac gluten/wheat sensitivity.Since its founding in 1990, Celiac Disease Foundation has funded and executed national initiatives in three principal areas to bring an end to the suffering caused by celiac disease: medical research, patient and healthcare provider education, and public policy advocacy.
Our journey began late one night in march 2017 when for the 2nd time in 2017 I was alerted to my wife’s excruciating stomach pain. As I was in the kitchen preparing dinner for our family of 7, I heard a blood curdling scream coming from my wife in the bathroom. I ran into the bathroom to see my wife on the toilet crying and wreathing in pain sweat poring from her forehead, and shaking uncontrollably. Trying to figure out what to do as her husband, her protector. Phone in one hand about to call 911 to rush her to the hospital she finally regains some control and says she can get through this. After 45 minutes she is able to walk to the front room and apply a heating pad to her stomach while moving the heating pad and trying not to scratch the rash that has taken over her body. It was time to figure this out. We made an appointment and off to the doctors the next day. Then began a journey of tests starting with a biopsy of her rash that showed she had an allergic reaction to one of her medicines. After changing medications to no avail, doctors decide to do blood work and schedule a biopsy. Blood work done and waiting for results we are ready for a biopsy April 12th to try and figure out what has made my wife nearly scratch her skin off for well over a month, suffer from depression, have little to no energy, and struggle with the most debilitating stomach pain and migraines. While waiting to find out what it might be we heard thrown around a word called Celiac. Waiting in the surgical room her doctor comes in and says, “ just seen your blood work and guaranty you have Celiac Disease 100 percent certain”. After a quick 30 minutes in surgery, as I wait anxiously in the room my wife comes back, followed by her doctor 10 minutes later and says with his direct quote to a very anxious couple (us), “well you have Celiacs and that sucks, here is some paper work you will need to change your diet and go gluten free”. Tears begin to stream down from my wife’s eyes and then the real journey began. First thing on the agenda, fire the gastro doctor with less than zero bed side manor and begin the Celiac free life. Without a doubt I myself decided to make the life changing decision to go gluten free and support my wife. On our way home we stopped at our favorite pizza place, The Pie for our first taste at GF pizza. After endless hours of research along with trial and error we decided that there needs to be way more information for this disease than just the latest popular GF fad. Being a runner and triathlete I wanted to do what I could to support not only my wife but others who struggle with this disease. I decided to join the Celiac Disease Foundation to run and support this great charity in the LA Marathon to help bring Knowledge and caring support to the Celiac community.
- Please help us bring awareness to this Disease by donating to the cause Thanks,
- Jeff and Nichele Page