During lockdown this year James was admitted to Frimley Park Hospital suffering with severe seizures and stroke like symptoms. After weeks of tests and 3 weeks in hospital he was finally diagnosed with a form of Mitochondrial Disease. His form of this awful disease (MELAS) effecting James's growth and development in his brain is so rare and there is no cure. The rarity of Jamess illness means we know very little about it. A 5 minute walk for James tires him out. He sleeps for 12 hours a day sometimes more and has no energy. This is due to the 3 lots of Diazepam that he has to take to keep the seizures at bay. He is turning 17 soon and should be enjoying the things other teenage boys do ..... but he can't. The Lily Foundation are an amazing charity who are investing money in important research to find better treatments and a cure. They also support families like James' Please support me by donating so we can beat mito together and improve the future of young people like James.