Your friends are fundraising. Don't miss out, opt in.

66 %
£1,330.95
raised of £2,000 target
by 48 supporters
Donate
Jemma Morgan avatar
Jemma Morgan

Jemma's fundraising adventures for Amy and Friends

numerous activities for Amy and Friends because these families are a true inspiration

66 %
£1,330.95
raised of £2,000 target
by 48 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

I have been looking after a little girl for the past 4 years who has this condition. I have also met a few other young ladies who have cockayne syndrome, these children have such a short life expectancy and I want to raise as much money as I can to help find a cure but mainly to give these amazing young people some fond memories in what sort time they are with us!

I have done a skydive  and a number of 5/10k's for this wonderful organisation and on the 29th of March I will be taking part in the Liverpool half marathon. xxxx

Photos

2

Supporters

48