Please help us to raise as much money as possible, as we challenge ourselves to run 10k, in memory of the most perfect little lady, Cecilia Bonnie Brady (Ceci) who aged just 3 years old, grew her angel wings on Friday 12 August 2022. 

Ceci was truly the most amazing little girl, not phased one bit by any of the adversity that she faced in her too short life. She would light up any room with her fantastically infectious smile, a smile that will live on forever. She meant so very much to so very many, meeting her really did make a huge impact, she was one in a million and her massive presence is missed every day. 

Ceci was born in October 2018, to the BEST parents, Heather and Thomas. Loved so so much by her wonderful big brother and sister, Thomas and Alexa. Perfect in every way, such a happy, delightful baby. 

In October 2020, Cecilia was diagnosed with Angelman Syndrome (AS), an extremely rare genetic disorder, which many people will never have heard of. AS affects approximately one in 15,000 people - around 500,000 individuals worldwide. AS typically causes balance issues, motor impairment and debilitating seizures. Some individuals never walk, most do not speak. Disrupted sleep cycles can be a serious challenge to the individual and their caretaker(s). Continuous care is required throughout childhood and adulthood. 

There is currently no cure for AS. However, Ceci's amazing family, since 2020, have been tirelessly working to change this. They have done so through organising and taking part in really tough cycle challenges, attending international conferences to gain amazing insight into AS, and fundraising at many, many fantastic events. All this whilst working so very hard and raising three absolutely perfect young children - helped with a wine and a beer with us from time to time ☺️. 

Scientists believe that AS has the greatest potential for being cured, when compared to other neurogenic disorders. FAST (Foundation for Angelman Syndrome Therapeutics) has a plan well underway to achieve just that. Please help us to raise money for FAST, so that they can continue their fantastic work, to find a cure for AS. Every little helps, we appreciate your support so much!

Ceci, taken too soon, but in our hearts and minds forever. You will be with us on every step of this run - no doubt beating us, you fast mover you! 💙