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Young Onset Dementia affects adults under the age of 65 and nationally there are about 40,000 younger people with dementia. Traditional services are designed to meet the needs and expected therapeutic out-comes of older adults and subsequently, access to activities appropriate for younger adults with dementia is limited.

People with young onset dementia often experience a more rapid decline in cognition and quality of life at a time when they may otherwise have expected to be in employment and to have an active social life. The same applies to partners and other family members who consequently face social isolation and carer stress. In many cases, carers have to give up work to support their partner and therefore, the ability to provide respite on a daily basis is often pivotal to keeping carers in work. Furthermore, for the person with dementia, lack of appropriate activities can result in an increase in social isolation, apathy, a decline in health and increased risk of behavioural and psychological symptoms of dementia.

Younger People with Dementia (Berkshire) charity was set up in 2012 to assist in filling this gap in provision for those with young onset dementia and their family and carers. Their aim is to provide meaningful respite that works with current provision over the working week.

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