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 George my nephew  is 10 but jumping is one of the hardest things for him to do. Despite all his effort his feet can hardly lift from the ground, and eventually he will loose his ability to jump, to walk,....and to live altogether! This is the sad reality of his severe and life limiting muscle wasting condition, Duchenne Muscular Dystrophy (DMD) that will eventually take over every single muscle in his body unless we can find treatments or a cure to prolong his life.

I’ve therefore decided to ‘Jump4George’ with a SKYDIVE to raise cash for more research into treatments and a cure.

Duchenne MD is the most common killer in boys and the severest muscle wasting condition. There are approx 3500 people affected (mostly boys), and it is caused by a mutation in the dystrophin gene. Dystrophin is a protein that is vital for muscle strength, and boys with DMD are missing this in their bodies. Their muscles gradually get weaker, which starts in their legs and progresses to their upper bodies, and eventually the heart! They are expected to be in a wheelchair full-time by the age of 12, with average life expectancy mid to late twenties. 

Despite this, Duchenne is classed as a rare disease so gets no big company or government funding. It's parent led charities like Action Duchenne and the kindness of communities and people like you who donate that makes a difference for our boys. For the first time in 30 years scientists are closer than ever to finding a cure. This year, gene therapy is is one of the most exciting and potentially life changing therapies in the world at the moment. The aim is to have one injection that will effectively correct the faulty gene, and allow the body to produce dystrophin, and the first ever UK trials are being planned on patients with Duchenne! 

We pray with all our hearts that a treatment or cure comes in time to extend George's life, and all those within the Duchenne community living with this heartbreaking disease.

Thanks for reading to the end of my JustGiving story. All donations are so very welcome to help our cause.

Thank you so much to everyone......💙  

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