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£210.00
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Jennifer Green avatar
Jennifer Green

A life for lewis

Fundraising for Tree of Hope

70 %
£210.00
raised of £300 target
by 9 supporters
Donate
  • Event: Lewis Herbert 2 Appeal, 30 Nov 2020

Tree of Hope

We offer hope to families to transform the lives of sick children

Charity Registration No. 1149254 In Scotland SC042611

Story

Thanks for taking the time to visit my JustGiving page

Hi, my name is Jenny and I am running the London Marathon on April 24th in aid of the ‘A Life for Lewis’ appeal. Lewis Herbert was born in 2002. He was diagnosed with West Syndrome at 3 months of age. This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay. He can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried. He is severely disabled and unable to do anything for himself. He relies on his Mum and Dad for all his personal care needs. I've known the family for many years and every donation however small will be much appreciated.

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Photos

2
  • 15 mile training run!!

Supporters

9