Your friends are fundraising. Don't miss out, opt in.

156 %
£1,445.00
raised of £925 target
by 52 supporters
Donate
Jessica Broatch avatar
Jessica Broatch

Jess's Sugar Free Month for Epilepsy - #sugarfreeforepilepsy

I am giving up sugar for the month of November for Matthew's Friends because they are supporting our son Patrick.

156 %
£1,445.00
raised of £925 target
by 52 supporters
Donate

#sugarfreeforepilepsy in November for Matthew's Friends

Going sugar-free for November to raise awareness of Ketogenic Therapy for complex epilepsy and funds for the Ketogenic Diet Charity supporting families and professionals, Matthew's Friends.

Charity Registration No. 1108016

Story

Thanks for taking the time to visit my JustGiving page.

A year ago our son Patrick was diagnosed with Glut-1 Deficiency, a rare genetic condition that affects brain metabolism. It is caused by a mutation in the SLC2A1 gene which regulates the glucose transporter protein type 1 (Glut 1). Impaired glucose transport associated with Glut1 Deficiency creates an energy crisis in the brain and often results in seizures, movement disorders and developmental delays. The standard of care treatment is a ketogenic diet. This low-carbohydrate, high-fat diet causes the body to produce ketones, which are used as an energy source by the brain and other tissues when glucose is limited.

Matthew’s Friends is a registered charity that specialises in ketogenic dietary therapies for medical conditions including Glut 1 Deficiency. 

Within two weeks of him starting the diet, the seizures (absences) stopped completely.  Since then we have noticed huge improvements.

I am therefore looking to raise money and awareness for Matthews Friends and the Glut-1 condition.

#sugarfreeforepilepsy

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Photos

1

Supporters

52