When I was 18 I started to become poorly. I was being sick, weirdly leaking from my breasts, having severe headaches and generally feeling very tired, faint and dizzy. It took all of my energy to just do even the smallest of tasks. After endless tests, prods and trips to the doctors an MRI scan on my brain showed a small growth and I was finally diagnosed with a microprolactinoma. Put simply, a microprolactinoma is a benign, pea sized tumor on the pituitary gland in the brain which causes an imbalance of the hormone prolactin in the body. At first I was completely terrified, hearing the words 'brain' and 'tumor' in the same sentence was overwhelming and I was upset, confused and scared. I had no idea what a microprolactinoma was, and a Google search was filled with forums of other women, and even men, discussing how the condition had impacted upon their lives.
The thing that jumped out at me most was the subject of fertility, and the problems that a prolactinoma can cause. In many cases the hormones produced by a prolactinoma make it difficult for women to conceive, and this is something I really struggled to comprehend. Anyone that knows me will know how much I love children and that the only thing I've ever really wanted to do in life is be a mum. The thought that I may never achieve what I've always dreamt about is completely crushing, but I know there are other options available and many women have gone on to have children despite suffering with a prolactinoma.
Nowadays my life consists of regular doctors appointments, 3monthly blood tests, 6 monthly hospital appointments with my consultant, occasional MRI scans and 9monthly appointments at the eye hospital to check the tumor isn't pressing on the back of my optic nerves. It's been almost 5 years since I was diagnosed. At first I was told I'd be on tablets for life, but earlier on this year I came off them for the first time since 2011 as my consultant wanted to see how my body would react without relying on the tablets. I'm pleased to say that I'm feeling really healthy and doctors are pleased with my progress- my next check up is in November so I'll be anticipating the results of that in due course.
As you'll know by now, the reason I've created this Just Giving page is to raise awareness of prolactinoma's and raise money for The Pituitary Foundation, a brilliant charity which has helped me enormously since my diagnosis. I'm aiming to raise as much money as possible for this fantastic cause so if you could please please donate something, as little or as much as you want, it would mean an awful lot to something that is very close to my heart.
THANK YOU!
Love Jess x
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