Just4Children has so far raised enough funds for Finn to access therapies including Hyperbaric Oxygen Therapy to support his vision and specialist equipment to develop his tone.

Rosie Finns mum gave me this update to post… 

Since birth Finn has undergone two cataract operations to help his vision and a tongue tie operation to help with speech and eating. He is due another MRI to help us investigate any changes to his brain and to continue to find a diagnosis. We have exhausted all genetic testing available on the nhs so there is the potential to raise funds to go private to seek answers. Without a diagnosis we cannot understand how Finns life and our lives will be affected in the future. If the condition is genetic and hereditary then things need to be in place to support our daughter if and when she decides to have children. In addition We cannot move forward in our own plans to expand our family without the uncertainty of this happening again.

We lost our battle for finn fo access higher rate DLA, even though he is severely disabled and unable to walk or talk or do anything independently, they still would only award middle rate. Therefore we have had to significantly reduce his weekly therapy due to lack of funds. Any fundraising contributes towards additional therapy and services that can help finn progress or access his basic entitlements (we paid to have his Ehcp plan checked by experts in order to ensure his basic needs are met at school).
So far fundraising has enabled us to purchase expert equipment that we use daily to support Finn and we are seeing developments in his progress. However we are aware that down the line we may need adaptations to our home to support finn with the stairs and the bath once he is too big to be carried around.

We are so grateful for every bit of support we receive ♥️