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Jessica Torrance avatar
Jessica Torrance

Jess is running the Edinburgh Marathon for Invest in M.E.

I am running my first marathon for IiME because I want to raise awareness & funds for ME research

104 %
£3,145.00
raised of £3,000 target
by 104 supporters
Donate
  • Event: Edinburgh Marathon Festival 2018, 26 May 2018 to 27 May 2018
  • Team: Walk for ME 2018

IiME

We fund biomedical research into ME to create a strategy for cure/treatment

Charity Registration No. 1153730

Story

Hello everyone! I am running the Edinburgh Marathon on May 27th in aid of the charity "Invest in M.E.". As many of you know my younger sister Evie suffers from M.E. following a bout of Glandular Fever. Before M.E. Evie led a full and active lifestyle, she was always playing sport and throwing herself into everything life has to offer. Since becoming ill her health has gradually deteriorated over the past five years and she has now been housebound for the last 18 months. A very good day for Evie is having a shower, or having the energy for my parents to wash her hair. Evie's body does not produce enough energy. If you imagine your energy is like a battery charge, each day for a healthy person you would start the day at 100%, whereas Evie would start the day with a 10-20% charge. This results in her barely having enough energy to get through the day. Other symptoms Evie suffers from as a result of M.E. include pain, migraines, brain fog, severe noise and light sensitivity, an inability to regulate body temperature and overwhelming fatigue.



Myalgic Encephalomyelitis (M.E.) is a severe, acquired illness. Despite an estimated 250,000 people suffering from the condition in the UK there is little investment in understanding the cause of this illness. There are clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction. "Invest in M.E " is active in its support into high quality biomedical research which is the most promising route to finding a cause and treatment for this debilitating illness.



Despite Evie being so ill she somehow manages to keep optimistic and positive. I want to stay positive that my little sister will one day be well again and perhaps will run a marathon herself. I bet she would beat me!!



Please support this charity to give hope to Evie and everyone else suffering from M.E. that one day a cure will be found and they will be able to live a life that we all take for granted. Thank you.



If you want to read more about my little sister's story she writes a blog called Mindfully Evie, the link to her blog is below:

http://mindfullyevie.com

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