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£530.00
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jessica sandi avatar
jessica sandi

100k Thames Path Challenge for PAS

Fundraising for Pernicious Anaemia Society

106 %
£530.00
raised of £500 target
by 12 supporters
Donate
  • Event: Thames Path Challenge 2015, 12 Sep 2015 to 13 Sep 2015

Pernicious Anaemia Society

We Provide Information, Advice and Support to patients with Pernicious Anaemia

Charity Registration No. 1147839

Story

Thankyou for your donations.

I've chosen to support the Pernicious Anaemia Society, because B12d is something I have been diagnosed with.
I will be walking the 100k Thames Path Challenge on 12th September, 2015.

B12 deficiency affects both sexes and all ages, but the general misconception is that it only affects women over 60. Many of us inherit this condition and in turn, so do our children.  

Hundreds of thousands of UK citizens are B12 deficient, there are many symptoms, many causes and it is commonly misdiagnosed. Vitamin B12 has no known toxicity, in fact it is used in huge quantities as a treatment for cyanide poisoning. You cannot overdose on B12 injections.  

This deficiency can occur for many reasons, these include - inborn errors, parasites, and the use of many common drugs including, metformin and Omeprazole.  

B12 deficiency affects all body systems, from our brains to the tips of our toes. The protective coating for our nerves is stripped away and our brains start to shrink from a lack and a restriction of a B12 injection. Many patients are misdiagnosed with conditions such as Alzheimer's, dementia, Bipolar, Multiple sclerosis, Chronic fatigue syndrome, autism, ADHD, fibromyalgia to name a few. Countless sufferers remain undiagnosed due to flawed diagnostic tests, a lack of screening and health professionals lack of knowledge of the condition.   

These injections are vital to people who cannot absorb this life saving vitamin from food. Vitamin B12 is vital and we cannot live on just four injections per year.

The RDA for a non deficient patient is 2.5 mcg each day but those of us who cannot absorb B12 are expected to survive for 90 days at a time without it. This is a water soluble vitamin which our bodies cannot retain. It requires frequent replacement. Non deficient patients can freely access additional B12 whenever they need it from their body’s supply of stored B12. B12 deficient patients bodies, do not work in this way.  B12 oral tablets will not repair our neurological damage, but frequent injections will.

We are at the mercy of health professionals who are not educated adequately about B12 deficiency leaving many sufferers undiagnosed or indeed misdiagnosed. These same health professionals then follow outdated, restrictive, treatment guidelines which assume each sufferer is the same.   

Please help me to to support this charity and raise awareness. Have a look at there website for more info on B12d, you would be surprised at some of the symptoms and that they are caused by a lack of a simple vitamin but yet you have been diagnosed with something completely different.


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