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Jo Lilley

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Fundraising for Cystinosis Foundation UK

100 %
£350.00
raised of £350 target
by 23 supporters
Donate
  • Event: Kingston Breakfast Run, 11 Apr 2010

Cystinosis Foundation UK

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Charity Registration No. 1074885

Story

Hi all

I'm running the Kingston Breakfast Run (8.2 miles) on 11th April 2010 to raise money for the Cystinosis Foundation UK.  I only recently became aware of this charity as my friend's god-daughter has Cystinosis.  The disease is not well-known and children will have to undergo organ transplants and they often do not survive to adulthood.  This charity raises money for research and to raise awareness and offer support. 

Please be as generous as you can with your donations.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

Thank you. xxx

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