In 2004 I was diagnosed with ME. Then, and it still remains the case today that, there are no NICE approved medical treatments for this profoundly disabling condition. I was fortunate enough to be re-diagnosed with a different condition in 2005, which allowed me access to effective medical treatments. It's been a long slog, however, I am now recovered enough to get back into cycling which I loved before becoming ill.
My cycle will raise funds for a UK based Rituximab trial. Rituximab is a medical treatment used in various cancers and auto-immune conditions. In small scale trials in Norway this has proven remarkably effective. Compelling enough to warrant larger stage 3 clinical trials, which are now underway in Norway. Around 2/3rds of ME sufferers respond to this treatment giving them a dramatic improvement in the quality of their lives.
My coast to coast cycle ride will take place on the last weekend of April/beginning of May 2016 - the bank holiday weekend.
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