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Joan Crawford avatar
Joan Crawford

Joan's Coast to Coast cycle (Morcambe Bay to Scarborough)

Raising funds for a clinical trial of Rituximab for IiME because this helps about 2/3rds of ME patients to recover.

145 %
£2,111.31
raised of £1,450 target
by 75 supporters
Donate

IiME

We fund biomedical research into ME to create a strategy for cure/treatment

Charity Registration No. 1153730

Story

In 2004 I was diagnosed with ME.  Then, and it still remains the case today that, there are no NICE approved medical treatments for this profoundly disabling condition. I was fortunate enough to be re-diagnosed with a different condition in 2005, which allowed me access to effective medical treatments.  It's been a long slog, however, I am now recovered enough to get back into cycling which I loved before becoming ill.

My cycle will raise funds for a UK based Rituximab trial. Rituximab is a medical treatment used in various cancers and auto-immune conditions.  In small scale trials in Norway this has proven remarkably effective.  Compelling enough to warrant larger stage 3 clinical trials, which are now underway in Norway.  Around 2/3rds of ME sufferers respond to this treatment giving them a dramatic improvement in the quality of their lives.

My coast to coast cycle ride will take place on the last weekend of April/beginning of May 2016 - the bank holiday weekend. 

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