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Caroline Nicholls, who has never run a marathon before, is running the London Marathon on 23rd April 2017 to raise money for the Brittle Bone Society. Joanna Cannon and family are helping her raise money towards her fundraising total.
When I, Joanna , was unexpectedly born with OI in 1975, my family, who knew nothing of the condition, relied heavily on the support of the Brittle Bone Society for practical and emotional support. My Mum has said in the past that she does not know how she would have managed without them.
Growing up, I also relied on the fundraising efforts of the Brittle Bone Society, receiving funding for powered wheelchairs which enabled me to study, work, live and and parent independently. Without the Society's funding for this specialist equipment, I know my life would not be as it is now.
Since my son Jacob was born with OI eight years ago, the Brittle Bone Society has provided advice, guidance, and funding for a specialist wheelchair for him. I have also grown to recognise the importance for all our family to become part of the OI community which the Brittle Bone Society helps to create; updating our OI knowledge and sharing experiences and fun times with friends at annual family conferences.
Providing equipment, advice, and events to meet others with OI is costly, but incredibly important, in fact life changing for many including three generations of my family. It is for this reason that I am helping Caroline fund raise for the Brittle Bone Society.
"The Brittle Bone Society is the sole organisation set up to address the needs of people born with Osteogenesis Imperfecta (OI) in the UK and Republic of Ireland.
We will work towards improving the quality of life for people diagnosed with OI in the UK and the Republic of Ireland, providing advice, signposting and information, providing financial support for wheelchairs and equipment and raising awareness of the condition. We will also support and work with specialist healthcare professionals."
You can find out more about the Brittle Bone Society and the amazing work that they do at www.brittlebone.org .
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