Joe's Avenue of Volcanoes page

Joe Unsworth is raising money for Caring Matters Now
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Avenue of Volcanoes · 10 September 2015

Caring Matters NowVerified by JustGiving
RCN 1192670
Caring Matters Now is the only UK charity supporting children and adults affected by Congenital Melanocytic Naevi (CMN) - a genetic condition, consisting of dark brown hairy birthmarks covering up to 80% of the body. The condition has many expressions, some of which can lead to medical complexities

Story

Thanks for taking the time to visit my JustGiving page.

My daughter Jodi, was born with the severe skin condition called Congenital Melanocytic Naevus (CMN for short), which can be life threatening. This condition showed as dark brown marks, one of which covered 80% of her body. There were other marks known as satellites, which were too numerous to count.

From birth Jodi had 30 plus operations to remove some of the marks and also to make the largest mark on her body look more acceptable.

After 16 years of treatment, she decided with us that she would not have any further operations. This was because the main mark was starting to show through again despite all the trauma she had bravely endured during the treatment.

At the age of 15 Jodi was asked by the UK’s leading specialist for CMN, if she would consider starting a support group for children and parents affected by this condition. Without hesitation she agreed and soon she was in contact with parents of children with CMN.  The charity - Caring Matters Now – currently supports over 300 families across the UK and also families further afield, when requested to do so.

The charity needs to raise over £100,000 per year to support families and also - importantly - research into this condition. To date the research has produced amazing results, including finding the cause by identifying the ‘rogue’ gene.  The research is now striving to find a cure.

All proceeds from this challenge will go to this charity which is close to our family.  THANK YOU!






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Donation summary

Total
£7,330.00
+ £1,437.50 Gift Aid
Online
£6,080.00
Offline
£1,250.00

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