Hey guys, OK, so I've been wanting to do something for this charity for some time now. This is because sadly my Gran was taken from us by this horrible disease. I remember being away at uni when I was 19, and I was told to come home because nan's wellbeing had 'deteriorated' - when I came home, she was like a different women, deeply taken by the disease which took over her body and eventually killed her so very fast. It was a horrible shock to the family as she was always so energetic, happy, bubbly and above all healthy!
It's funny because in the past I've been known for being bothered about my hair appearance (lol), and this is to show that there are more important things in life and I'm very proud to be doing this :) ... If you want to come and watch/support/laugh, the head shave will take place at DW Gym in the brewery in Cheltenham on Halloween (31st October) at 6pm.
Nan passing from MND just goes to show that no one in this world is safe from anything, so live every day like it's your last and smile as much as you can. I'm doing this to raise money for the charity that can help to hopefully one day cure this brutal and devastating disease. We will remember her in a positive way, for the amazing charismatic and wonderful lady she was. This is for you nan :)
Below is a little more about the charity and how they can help...
This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.The work led by Bristol-based neurosurgeon Professor Steven Gill brings combines three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery CED.It is known that specific viruses can have a therapeutic effect on motor neurons and a technique called Convection Enhance Delivery (CED). This is able to deliver these viruses directly to the neurons in the brain. For many diseases such as MND. Delivery of genes to affected neurons to correct or repair defects has been a major challenge.The cost of the pre-clinical stage is £150,000. Thanks to My Name5 Doddie Foundation we are a third of the way there! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.