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Duchenne Muscular Dystrophy is a life-limiting progressive muscle wasting disease occurring in approximately 1 in 3,500, and affecting mainly boys. Joseph was diagnosed November 2016 and our worlds were turned upside down. Since then we have learned to live in the present, enjoy the now, and not look too far forward. We get by this way and also by hoping that a disease modifying treatment might come our way.  In the past 2 years the first treatments for some children have come to market, but there is still so much more to be learnt and investigated. It is no doubt an exciting time for those involved in the research of this condition and it is down to donations from people like you that things are moving forward. 100% of your donation will go to research and this will hopefully have a positive impact in the fight to radically change the outcomes for those living with the disease.

I will be running the Great North Run in September '19 and it is hoped that I can raise as much money as possible for Muscular Dystrophy UK, a charity who helped us when we first got the diagnosis. At the time when we were dropped with this life changing news there was no psychological  support  or advice on how to navigate through the new world we found ourselves inhabiting. We were given the news in a very clinical way and expected to cope.  After making contact with MDUK they  provided us with advocacy and no shortage of practical advice. They are a charity that is doing great work and as well as providing support to families they are funding key projects, such as gene therapy, that could fundamentally change the impact of DMD. Your donation will be greatly appreciated.

Thank you very much

John