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John Boxall running for Team PP

John Boxall is raising money for Save Babies Through Screening Foundation UK

Team: Remembering Phoebe May Knibbs

In memory of Phoebe May Knibbs
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The purpose of Save Babies Through Screening Foundation UK is to increase awareness of the benefits of newborn screening to detect Krabbes disease and other Leukodystrophies at birth, to promote immediate life saving treatment and to be a support group to families with children suffering from these rare genetic diseases.

Story

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I'm running the London Marathon 2014 for the seventh time this year, I last did it in 2006 to "celebrate" my 40th. Since then children have taken over my life, but having applied for a place every year I was lucky enough to get one for this year and my wife made sure there's no going back.

I've previously run for Macmillan because my mum died from cancer in 1999. However, this year I spoke about running for another charity and my wife suggested running for Phoebe.

Phoebe is the granddaughter of Ann who my wife and I have both worked with in years gone by. I met Hannah, Phoebe's mum, during this time. Phoebe passed away on the 23rd February 2013 aged 21 months after being diagnosed with Krabbe Leukodystrophy, a rare degenerative disorder that affects the nervous system.

I spoke to Hannah and Ann and they told me about this small charity that supported Phoebe's family; Save Babies Through Screening Foundation UK (aka Save Babies UK).

Save Babies UK is run entirely by volunteers. It promotes the advancement of research and treatments for krabbe disease and other leukodystrophies in the UK.

Save Babies UK has never had anyone run the marathon for them before this year. Hannah and Ann told me about Andrea French, who's running this year and now I make two.

I couldn't think of a better or more deserving cause and I immediately felt part of a small but committed and caring team, Team PP as we're known. 

We would all be so grateful for any support for this fantastic charity.

The thought of Phoebe and other babies and families affected by krabbe disease will keep me going whatever the weather.

Donation summary

Total
£3,766.20
+ £805.90 Gift Aid
Online
£3,766.20
Offline
£0.00

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