Dear friends, Our mission is simple, to change the lives, support & treatment for our patient families living with acrodysostosis. We have been given the chance of a life time by our partners Great Ormond Street hospital and Sparks to find & fund a researcher. the successful research applicant will be given up to £250k.But there's a catch.. WE need to raise the 25% pledge of £62.500k by April 2021!alone we don't stand much of a chance but together with your help this CAN be achieved. for more info please go to  www.acrodysostosis.org

https://youtu.be/RkzpdUsjQdM