James's Virgin London Marathon 2014 page

James Baker is raising money for DEBRA
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Virgin London Marathon 2014 · 13 April 2014 ·

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Story

Thanks for taking the time to visit my JustGiving page.

I recently attended a charity fundraising event at the Royal Berkshire Shooting School, where I gained my first insight into the devastating skin disorder that is Epidermolysis Bullosa (EB).

EB is a very rare condition that affects approximately 1 in 17,000 children born in the UK. The disorder results in fragility of the skin and, in some cases, other internal membranes and organs. Blisters, open wounds and sores form as a result of the slightest touch, rub or trauma. Certain types of EB can be fatal in infancy and others are severely life-limiting.

For further information on EB please visit http://www.debra.org.uk/article-what-is-eb.html.

Any support you can give will go towards scientific research to help find a cure for this disorder, as well as helping towards caring for existing EB sufferers.

Whilst the Marathon is a mammoth personal challenge for me, the discomfort I will experience is nothing in comparison to what EB sufferers have to go through on a daily basis.

Please help support in any way you can, and together we will raise awareness and funds for this worthwhile charity.

Many Thanks

James

 

 

 

Donation summary

Total
£3,985.00
+ £337.50 Gift Aid
Online
£1,460.00
Offline
£2,525.00

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