Jamie's Western Sydney Marathon

Jamie Rubbi-Clarke is raising money for CADASIL Eradication Project
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Western Sydney Marathon · 27 June 2021

CADASIL is the most common form of inherited stroke disorder. It is caused by mutations in the Notch3 gene. By learning how Notch3 mutations lead to CADASIL, we can better understand stroke, dementia, and small vessel diseases, overall. Through precision medicine and the promising potential of gene editing techniques such as CRISPR-Cas9, we will finally be able to start treating this and other once-“incurable” diseases.

Story

I ran my first (and last) marathon 21 years ago in Rome, so thought it was about time to do another one here in Sydney.

I’ve chosen the CADASIL eradication project to raise money for.  CADASIL is a rare genetic disorder affecting the small blood vessels in the brain.

Hallmark symptoms of CADASIL may include: 1) recurrent strokes, 2) cognitive impairment, 3) migraine with aura, and 4) psychiatric disturbances. These symptoms are caused by damage to small blood vessels, especially those within the brain.

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Donation summary

Total
£898.32
Online
£898.32
Offline
£0.00

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