I am taking on the 5 for April challenge. I'll do different '5' events each day. I was born in 1960 with EB Simplex, a shock to my parents who knew nothing about EB or why I had it. I sadly passed it onto my son and daughter and now to my first grandchild, my son's first baby born in lockdown Nov 2020. Debra have always been such a support to me and my children and now to my son and his new family.  Debra were in contact straight away and already have provided both practical and emotional support. Please help me to help Debra and baby Ada.  Together we can hopefully fund research into a cure and for treatment to ease the pain and suffering of those with all types of EB.

DEBRA UK has faced one of its toughest years in its history, but with your help they have been able to continue to provide vital services to the EB Community. Please help support my challenge so that an EB diagnosis doesn't have to mean a lifetime of pain and no one has to face EB alone.£126 could provide someone with EB access to vital community support and membership services - really making a difference to people's quality of life. #FightEBDEBRA are the only charity supporting the EB Community through grants to help members get access to food supplies, assisting with other financial issues, securing dressing supplies and supporting mental health and wellbeing. We have been able to adapt our services to help combat key issues of loneliness and anxiety, through new virtual support groups run by our crucial Support Team.