Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign
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PNH Support is a charity that supports people affected by Paroxysmal Nocturnal Haemoglobinuria (PNH). The charity provides information and peer to peer support, brings people together, advocates on their behalf and holds a biennial family conference