Justin and Isaac's Hastings Half Marathon page

Justin Bishop is raising money for Societi, The UK Foundation for Kawasaki Disease

Participants: Isaac Bull

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38th Hastings Half Marathon · 20 March 2022

Kawasaki disease is the leading cause of acquired heart disease in children in the UK and the western world. It's time we changed that. We have an enormous task to do. But we are going to do it. TOGETHER we will. Join us and help us protect tiny hearts. You can make a difference. Awareness of this often pernicious disease is currently poor. Slow diagnosis and delayed treatment of Kawasaki Disease can cause serious, life-long health issues. Children affected by Kawasaki Disease have excellent chances of a good recovery with timely diagnosis and the correct treatment. At Societi we know that recognising Kawasaki Disease early is THE transformational opportunity to prevent what can be devastating effects from Kawasaki Disease. Kawasaki Disease has lots of symptoms in common with other childhood illnesses so it is often misdiagnosed - this means lifelong heart damage for too many children. Each year in the UK there are more cases of Kawasaki Disease than bacterial meningitis! Everyone would spot meningitis and know what to do, because of brilliant awareness raising work by MRT. We need everyone to recognise Kawasaki Disease too.

Story

In February 2021 my son Alex started to feel unwell, gradually developing the symptoms we now know are caused by Kawaski Disease (KD). A rare disease we had never heard of but we certainly have now! 

That first week in February went from my son being ill, to fighting for his life, suffering severe heart complications due to the Kawaski Disease. 

We could not have had a better care team in the West Suffolk Hospital and the specialist care at the Evelina in London, without which Alex would not be here today. 

Still not enough is known about KD, it can't be prevented (YET!) and it can't be cured (YET!). Alex unfortunately suffered one of the worst effects in that he is left with 2 large aneurisms on his heart and will now be medicated, monitored and have his life changed for ever.

BUT we are lucky, he is still here with us and still strong. Myself and my best friend Isaac are challenging ourselves this year with a half marathon - and we are doing it to raise awareness of Kawaski Disease and funds for Societi - The UK Kawaski Disease Foundation. Please support us and give anything you can! It will push us over that finish line and Alex, with his big smile, will be there to cheer us on.

Thank you for reading (and donating :)) 

Justin & Isaac 
xx   

Donation summary

Total
£4,346.30
+ £829.75 Gift Aid
Online
£4,346.30
Offline
£0.00

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