Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.
The reason I am doing this is that I have a friend with two boys George & Alex who live with this life-altering condition. Treatment varies for each patient but they both have to have physio twice a day, nebulisers 3-5 times a day, inhalers 3 times a day and take between 35-40 tablets per day just to keep them well.
Alex also has CF related diabetes which requires insulin to manage and is awaiting surgery to have a permanent feeding tube fitted. It’s a lot to manage and the constant care needed is exhausting.
The Cystic Fibrosis Trust is a great help to the family and many more like them. The hope is that in the future CF Trust funded research will find a cure or more effective treatments to increase life expectancy and reduce the burden of treatment.
I am aiming to hit my target and thank everyone who has supported me so far. The generosity shown has been humbling and if I have to crawl over the line at 13 miles I will.
Thanks again everyone x
Fundraising for Cystic Fibrosis Trust
We work throughout the UK with one mission to beat cystic fibrosis for good
Charity Registration No. 1079049 (England and Wales) & SC040196 (Scotland)