For those of you who dont know My aunty Doris was Diagnosed with GSS 3 years ago. It was unbearably painful to watch a loved one deteriate so rapidly from a bubbiling extravert into a shell of her former self leading up to her demise. As this is such a rare and unknown illness the research is woefully underfunded and the diagnosticprocess is slow as a result. I know this is a rare illness but it deserves to be better funded so suffers and there families can be better supported. 

 

I cant stress enough how helpful the CJD support network has been throughout the course of Doris' illness they are completely reliant on donations so your help, no matter how big or small is greatly  appreciated.