Story
Thanks for taking the time to visit my JustGiving page.
Im doing this London Bridge Walk to raise money and awareness for this relatively unknown charity and this relatively unheard of condition.
Almost 4 years ago a close friend of mine devastatingly lost her beautiful 14 month old son, who had been born with this life threatening condition, one that not many people have ever heard of. There are a team of us doing this walk to raise money and awareness so that Debra can continue to help and support other people who are suffering with EB.
Please take a minute to look at the website and understand this condition which means that skin is as fragile as a butterfly, hence the picture on my page.
www.debra.org.uk
I really appreciate your help x
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So please dig deep and donate now.
