Story
I’m doing this run for my son, ‘pup’, who has mitochondrial disease. It is a life limiting disease and there is currently no cure for it. I’m also doing it for the other warrior mito kids who are so strong and so inspirational.
The lily foundation is so much more than just a charity. It is a family of other families that’s are there for each other in the best and worst of times, who actually truly understand how each other are feeling. It’s a real life line and a real family.
The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.