Grayson developed NEC at 14hrs old, he was transferred via ambulance to a level 3 hospital in london (st Thomas’) he was very poorly and antibiotics did not clear it so surgery was the only option at 5 days old. It saved his life and we will forever be grateful to his surgeon and all the neonatal staff. Grayson had a stoma formed during that surgery which myself and rob had to learn how to take care of the stoma before we could leave with our new baby. Grayson has regular visits from community nurses for weight and sodium checks and has to have medications daily. He went in for a reversal operation in March which went horribly wrong and he ended up needing life saving surgery 2 days later and ended up losing all of his large intestine so had another stoma formed called an ileostomy using his small intestine, he was VERY poorly and ended up in intensive care on life support, we came so close to losing Grayson that we have now decided that we will not put him through another operation for another reversal so his stoma will now be for life. This little boy truly is amazing and has beat all odds and come out the other side,  He will always be our little warrior as he has been through so much and always has a smile on his face regardless 

NEC UK is a parent led registered charity for Necrotising Enterocolitis, NEC (1181026)Here at NEC UK we also raise vital funds to support:Medical ResearchFamilies affected by NECWe offer phone, email and social media supportArrange yearly family meets,Provide Parent Care packs to families affected by NEC in NICU units across the UKSupport Kangaroo Care by providing Kangaroo hampers to any parent in NICU across the UK.Donate electric breast pumps to NICU across the UKOffer Nappy Support for children who use over the average nappies,Provide 'Bags of Love' for bereaved parents