Katrina Aston

1 Million Steps for CES

Fundraising for Cauda Equina Champions Charity
raised of £100 target
by 15 supporters
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Cauda Equina Champions charity want YOU to join them on their mission of getting people up, out and raising vital awareness for Cauda Equina Syndrome (CES).


My story starting in 2012 when I first had a bad back which was getting gradually worse. I visited the Doctor in July and my journey began. I had an MRI and it showed I needed an operation for 2 bulging disc’s, they said it would be around November time. 

In September I got up as I was in horrendous pain and my husband managed to get me downstairs and I laid on the front room floor where I stayed for 8 hours because I couldn’t get up. The ambulance came and gave me gas and air to get me up and in bed. I stayed there for a week and was prescribed tramadol and codeine. 

My legs, feet and saddle area was now numb and I couldn’t lie flat so I was sitting and sleeping in my arm chair for 24 hours a day. I couldn’t sleep because of my terrible pain and my body began to swell up. I was now on sleeping pills, tramadol, codeine, morphine and paracetamol 

In October I had seen a spine specialist, 2 trips to A&E , numerous visits to the Dr’s and another ambulance called out and a home visit by a Dr not one of those professionals mentioned red flags or Cauda Equina Syndrome to me. 

By the middle of October I was barely walking and could only do so with a rolater. One morning I tried to get to the bathroom but wet myself before I got to the toilet and slipped on the wet floor.

My Mum took me to A&E to be tested for Cauda Equina after a telephone call to the neurologist in Sheffield who advised we go straight away. I had the test (which was a finger up my bum, could my day get any worse YES!!! )  😩

I was immediately transferred to Queens Medical Hospital in Nottingham, blue lights flashing and everything!!!

It was the most painful and the scariest thing that has ever happened to me. I arrived had an MRI and was operated on at 8.00am the following morning. 

I spent 5 days in the hospital and on the day of my discharge I was told by a specialist nurse that I had Cauda Equina Syndrome and all the numbness I had felt before the operation was with me for life, I was totally devastated. This was caused by my 2 bulging disc’s that had squashed my spine damaging my nerves leaving me with permanent damage 😪 

I spent 5 months in a wheelchair and spent hours in physio and hydrotherapy getting stronger to help me walk. I then ditched my wheelchair for 2 crutches and then 1 crutch and eventually just my 2 feet 😀 

I went back to work part time and eventually full time and then had to deal with my mental health but I’m pleased to say I am 80% there. Thanks to my amazing family and friends and especially my Mum, and husband, I wouldn’t have got through it all without them.

I am now on lots of nerve pain medication, nerve pain feels like you have been stabbed then the knife wriggled about inside you then pulled out!  Best way I describe it!! Not much fun. 

Please look up Cauda Equina Syndrome and the red flags to look out for. Do not let your family or friends go through what I went through 😀 

The red flags to look out for are below

Please donate and let’s get the word out there 

Walking a long way is a struggle for me so this will be a challenge 😊 xxxx

About the campaign

Cauda Equina Champions charity want YOU to join them on their mission of getting people up, out and raising vital awareness for Cauda Equina Syndrome (CES).

About the charity

Cauda Equina Champions Charity is the leading UK charity for Cauda Equina Syndrome. Patient led, we work with healthcare professionals, raising awareness of the condition and supporting those affected by the condition. With over 10 years experience, we are here for you. Our Helpline is 03335 777113

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