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39 %
£237.79
raised of £600 target
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Katy Irving avatar
Katy Irving

Katy's 30 Park Runs For Kai

Running 30 parkruns for Joseph's Goal because NKH is a terrible disorder and deserves a cure

39 %
£237.79
raised of £600 target
by 8 supporters
Donate

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

Thanks for taking the time to visit my JustGiving page.  My new year's resolution is to run 30 x 5k parkruns (and volunteering at 2) in 2019. Although this is a personal goal, I am raising money for Joseph's Goal in honour of our dear friends Elly, Sam and their son Mikaere. Mikaere (Kai) is a beautiful 2 year old who has a rare and terminal glycine metabolism disorder Nonketotic Hyperglycinemia (NKH) that means he has complex medical needs and severe developmental delay; its a terrible disorder that is under served by specialists, lacks treatments, and Elly has had to give up her career become his full time carer.

Please consider donating £1 per run to support Joseph's Goal for #teammikaere. If only 20 of you do this we'll make our goal and the funds will go to NKH research

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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Supporters

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