Kawasaki Disease UK

Kawasaki Disease UK is raising money for KawasakiFund

Participants: Dee Izmail

Story

Kawasaki Disease, also called Kawasaki Syndrome or mucocutaneous lymph node syndrome is an illness mainly affecting children under five. It is characterised by inflammation of the blood vessels (‘vasculitis’) and in particular damages the coronary arteries that supply blood to the heart.

About 1/3 of untreated children with KD suffer heart damage, making it the most common cause of heart disease acquired in childhood in many countries, including the UK.

What We Do

Founder Dee Izmail and her team work to get a better understanding of Kawasaki Disease and spread knowledge through creative Campaigns and Events. Collaborating with potential sponsors in all sectors helps utilise extensive charity workspace in Essex & London with Partners who create new revenue streams and donations for the charity cause.

The team aims to support and gain updated research with specialists
and research departments to develop awareness in communities.

Mission: To save lives and promote recovery in those who acquire heart disease (KD).

Values:

Healthy hearts. Saving lives

Making an impact together through campaigns.
Updating research through Medical systems.
Empowered parents. Knowledge is our power!

Vision:
We want to see more occurrences of early detection of symptoms, and the right treatment before problems occur in adult life.
Together we will make it happen.

Support:

Parents, medical specialists, sponsors and the general public come together to support Kawasaki Fund’s vision. Every contribution makes a difference.

In 1993 Nadia showed 5 of 6 classic symptoms of KD when many GPs misdiagnoses were thought to be symptoms of Allergies and Virus. By day 11 Nadia presented all 6 classic symptoms of KD and reached the acute stage of the disease and had already developed 2 aneurysms to her coronary arteries.

Her alarmingly late diagnosis was identified by a South African nurse in the A&E waiting room who had previously seen the condition in his home town. Nadia was hospitalised and prescribed 10 days of Glamagobulin treatment to rebuild her immune system and high doses of Percentin/Aspirin to keep her blood thin preventing possible cardiac
arrest for a duration of 3 years.

Her mother, Dee Izmail began her journey with this Charity to spread awareness so that others would be diagnosed more promptly. Three years later Nadia was considered a ‘miracle baby’ having made a full recovery.