Thanks for taking the time to visit my JustGiving page.

On the 27th of August I will be jumping out of a plane, taking part in a 10,000ft freefall to raise money for a charity that I hold very close to my heart. My beautiful niece, Imogen was the first to be diagnosed in the UK with Myhre Syndrome at the age of only 2 years old! Since this time, she has had to deal with numerous hospital visits & is due her second back operation at the age of now 9! 

Since Imogen's diagnosis, her wonderful parents have raised money & awareness & found many other beautiful children that suffer with this extremely rare syndrome & being so rare, the doctors in the UK have little knowledge, therefore lack of treatment to help so please help me raise money for more research to give these incredible kids a better life!

About Myhre Syndrome -

Myhre syndrome is a rare, but increasingly diagnosed genetic disorder characterized by short stature, characteristic facial features, distinctive heart and aorta problems, mild to moderate intellectual disability, autism/autistic-like behavior, and various bone and joint abnormalities.