We had never heard of Perthes before and did not know what to do or expect. Rory was immediately heartbroken that he would not be able to play football for the next few years. He was also scared for his upcoming operation and the fear that he would not be able to play with his friends like other 8 year old children.
2 months later Rory had his "shelf" operation which strategically placed bone to protect the ball part of his hip joint. Rory was so so brave and a true "Perthes Warrior".
Rory cannot join in PE at school, he cannot jump, run or walk without crutches but he can swim and he loves it! We go swimming regularly and this has really helped his recovery whilst also allowing him to join in a fun activity.
He is now 1 year into using his crutches and has 1 more year to go. The Perthes journey is a long one but he is coping tremendously and he makes us extremely proud.
Mum's Challenge:
As I am so in awe of our brave warrior I wanted to raise awareness for Perthes disease and support an amazing charity Steps Worldwide. Steps is the leading charity working for all those whose lives are affected by childhood lower limb conditions . Everything they do is about valuing and supporting individuals and families affected by conditions which have an impact on the legs, hips or feet.
When I was trying to think of ways to fundraise I thought "what do I least like doing?" and the answer was obvious....RUNNING. I really want to love running but I don't, I am NOT a natural runner! So that was it - I decided I would run 100km over 4 weeks (5 runs a week). I will start on 17th November and finish on 15th December (the day before Rory's next hospital appointment).
As a family we would be extremely grateful for any donations to support Steps Worldwide which helps support so many families like ours!