Kelly's page

Kelly Farrell is raising money for The SMA Trust
In memory of Harry Dyer-Griffiths
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Great Birmingham Half Marathon 2018 · 14 October 2018 ·

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

Thanks for taking the time to visit my JustGiving page! 

My Godson Harry was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - a genetic neuromuscular condition with no cure when he was just a few months old. Just three days after his diagnosis, a couple of hours after his beautiful christening, he grew his angel wings in the arms of his Mom and Dad. 

I'm running the Birmingham half marathon for The SMA Trust to support everyone who has had their lives changed by this condition. They are an amazing support to Harry's Mom, Dad and family and we want to ensure they are able to find a cure for this devastating condition and support other families in similar situations. #TeamHarry have been fundraising ever since he passed and we're nearly in reach of the £20k target! 

Thanks for your donation and for taking the time to read our story.  


Donation summary

Total
£685.00
+ £130.00 Gift Aid
Online
£685.00
Offline
£0.00

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