( All Money Raised Goes to Yorkhill children's Foundation )
So A bit Of Info On why We set up Jamie's CharityJamie Robert Alexander born 5th october 2010 - Died 26th december 2010
My partner and I Found Out at our 20 week pregnancy scan That our First born son would Be born With A major Congenital Heart defect. At this time we were told he would most likely be born with an Extra Chromosome, Down syndrome ( Trisomy 21 )
When Jamie was Born He Was doing Fabulous, he Struggled For Air when he was first born but soon recovered. Tests Showed he had Very bad heart Defects ( Hypoplastic right heart syndrome, Complete AVSD ) And also that he had A bowel Defect ( Hirshprungs Disease )
Jamie Was very strong and constanstly made progress, Impressing all the doctors Despite a few minor set backs and 2 operations.We were all set to take him home to live a long(ish) Happy Life As we were told he would live to his late teens
However On the 17th December Things took a bad turn, Jamie had Spiked a temp of over 42 degree's and Doctors struggled to get it back down, All we could do was stand and watch as Specialists at Yorkhill hospital Battled to save our wee mans life.
On Christmas day we wanted to make it as special and proper as Possible and we had a lovely day opening Presents etc, But that night Nurse's Pulled us aside and Urged us not to leave as it was only a matter of time... Jamie's Breathing had dramatically decreased. We called family and they began the 3 hour journey to Yorkhill. In the early hours of boxing day a nurse Woke me up gently ( i was asleep in a Chair nect to Jamie's Bed ) And told me that again Jamies Breathing had decreased ( sometimes less than 10 breaths a Minute compared to his usual 60-70 ) And She Handed Jamie to Me. We had a sleep together and At midday our Family arrived, They gave Jamie a Kiss and Cuddle And While He was still stable i Thought i would jump in the shower, however Before i got the chance i was called back to his room As Jamie had stopped Breathing, Nurse's Kept him alive until i arrived then Passed my Gorgeous, Fragile Son to me as we sat down Jamie Took a couple of Breaths then his chest just stopped Rising, and within a few minutes his Heart stopped Beating. Our Beautiful Son was gone and now at peace!
The reason we set up his charity and Why we Want to Raise money for Yorkhill Childrens hospital is Because we cannot thank them enough for the amazing Work they do there, they made our time with Jamie as special as possible and we will be forever greatful