Jamie Alexander Foundation

Thankyou for taking the time to Look at The Jamie Alexander Foundation
( All Money Raised Goes to Yorkhill children's Foundation )

So A bit Of Info On why We set up Jamie's Charity

Jamie Robert Alexander born 5th october 2010 - Died 26th december 2010

My partner and I Found Out at our 20 week pregnancy scan That our First born son would Be born With A major Congenital Heart defect. At this time we were told he would most likely be born with an Extra Chromosome, Down syndrome ( Trisomy 21 )

When Jamie was Born He Was doing Fabulous, he Struggled For Air when he was first born but soon recovered. Tests Showed he had Very bad heart Defects ( Hypoplastic right heart syndrome, Complete AVSD ) And also that he had A bowel Defect ( Hirshprungs Disease ) 

 

Jamie Was very strong and constanstly made progress, Impressing all the doctors Despite a few minor set backs and 2 operations.We were all set to take him home to live a long(ish) Happy Life As we were told he would live to his late teens
However On the 17th December Things took a bad turn, Jamie had Spiked a temp of over 42 degree's and Doctors struggled to get it back down, All we could do was stand and watch as Specialists at Yorkhill hospital Battled to save our wee mans life.

After a few hours they managed to Stableise Jamie and we were told to go to parent accomadtion and rest, So The next day We went over to the hospital as we did every day Stupidly believing everything would be back to normal.... however Jamie's Specialist, Family liason, surgeon and a nurse Asked us to Come along to the Family room for a chat.There we were told That as a result Of Jamies temp, His body had been starved of oxgen for too long and his Kidneys and Liver Had Failed, We were given the news no parent ever wants to hear, Jamie had only a maximum of 1 month to live, and we had to agree to palative care. We were given our own wee room and i stayed with him every night! On the 23rd of December We got married, right there in Jamie's Hospital Room ( the first couple to get married in Yorkhill ) But it was important For us that Jamie be there to see his Daddy And Mummy get married and 2 of Jamies Lovely Nurse's Were My Bridesmaid / Whitness's.

On Christmas day we wanted to make it as special and proper as Possible and we had a lovely day opening Presents etc, But that night Nurse's Pulled us aside and Urged us not to leave as it was only a matter of time... Jamie's Breathing had dramatically decreased. We called family and they began the 3 hour journey to Yorkhill. In the early hours of boxing day a nurse Woke me up gently ( i was asleep in a Chair nect to Jamie's Bed ) And told me that again Jamies Breathing had decreased ( sometimes less than 10 breaths a Minute compared to his usual 60-70 ) And She Handed Jamie to Me. We had a sleep together and At midday our Family arrived, They gave Jamie a Kiss and Cuddle And While He was still stable i Thought i would jump in the shower, however Before i got the chance i was called back to his room As Jamie had stopped Breathing, Nurse's Kept him alive until i arrived then Passed my Gorgeous, Fragile Son to me as we sat down Jamie Took a couple of Breaths then his chest just stopped Rising, and within a few minutes his Heart stopped Beating. Our Beautiful Son was gone and now at peace!

 

The reason we set up his charity and Why we Want to Raise money for Yorkhill Childrens hospital is Because we cannot thank them enough for the amazing Work they do there, they made our time with Jamie as special as possible and we will be forever greatful