Jacqueline Webber

KFA Test Team Walk

Fundraising for Barth Syndrome UK
£863
raised of £400 target
by 38 supporters
Donations cannot currently be made to this page
Barth Syndrome UK

Verified by JustGiving

RCN 1181830
We support families & fund research to improve the lives of affected people

Story

Thanks for taking the time to visit my JustGiving page.

Most people will not have heard of this small charity as this condition is rare. But for those of us at KFA it had a profound effect on our lives, when Sebastian, the son of one of our colleagues, lost his fight against this condition at the age of 2. We were all heartbroken.

The Test Team at KFA started to do an annual charity walk last year, and we choose a cause that has real meaning to us. This year it is Barth Syndrome.

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Thank you for your support

About the charity

Barth Syndrome UK

Verified by JustGiving

RCN 1181830
Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.

Donation summary

Total raised
£863.00
+ £167.50 Gift Aid
Online donations
£863.00
Offline donations
£0.00

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