Fundraising for The Campbell Burns Metabolic Trust
The Campbell Burns Metabolic Trust offers support to families of children aged ten and under living with a metabolic disorder.The Trust was established in the name of Campbell Burns, born in January 2012 and diagnosed with Leigh's Disease in March 2012, a terminal metabolic disorder.
Charity Registration No. 1148667
Kieran's niece Róise was just 9 days old she was diagnosed with a very rare genetic disorder called Phenylketonuria (PKU) -A very serious but very treatable metabolic condition that affects 1 in 10,000 children in the UK.
If you know Róise you will know she is certainly a healthy happy child who has not had any adverse effects, despite having this serious condition.
Róise and her family have received great support from The Campbell Burns Metabolic Trust. So we are asking you kindly to make a donation.
Kieran & Darren