Kieron is 9 years old.  He plays football with Max at EKFC Sunday Club.  When Kieron was told about Max's condition he replied " I take seizures, not as often as Max and I don't like it but I have magic medicine which helps - can I help Max get magic medicine??"  Cycling round Millport was Kieron's choice and we support him 100%.  Kieron was diagnosed with Autism Spectrum Disorder,  and ADHD - along with these conditions Kieron also has several medical conditions, one of which he takes seizures, he takes medication  daily to try and prevent them.

When Kieron was diagnosed with ASD, he couldn't ride a bike.  Kieron has Proprioception difficulties which make co-ordination difficult.  He never stopped trying - even when he was told by professionals he would never be able to.  Last year Kieron proved the professionals wrong by learning to ride a bike!!  This challenge is made more difficult by the fact Kieron will have to push himself to the limits to cycle for 11 miles.

Max is a friend and team mate to Kieron and he would like to do his bit to help send Max to Miami to receive treatment, please read a little about Max's story and donate whatever you can, every penny helps:

Max is just 13 years old and suffers from a form of epilepsy called Lennox-Gastaut Syndrome.  He was just living a normal happy go lucky life as a 4 year old when he had his first seizure in 2004, his and his family’s lives changed literally overnight.  Max now has to have constant supervision at all times, so can’t even have the luxury of going to the toilet himself, in case he takes a seizure and hurts himself.

We are raising funds to send him to a world renowned specialist based at Miami Children’s Hospital in pediatric neurology to stabilize him and either worst case scenario cut down on the amount of seizure’s, if not eradicate them completely.  Any help in fundraising towards achieving this goal is very much appreciated.

The goals of treatment for patients with Lennox-Gastaut syndrome (LGS) are the same as for all patients with epilepsy: the best quality of life with the fewest seizures (ideally, none), the fewest adverse treatment effects, and the least number of medications.  His parents are desperate for these things to happen as well as to increase his life expectancy, his quality of life and to give him some independence as he has none whatsoever at present. 

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