Maddie's 20 mile bike ride for Leah

Kirsty Andrews is raising money for ROHHAD Association
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Maddie's ride for Leah · 26 June 2020

ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Story

Thank you for taking the time to visit my JustGiving page.

A few years ago my best friend Leah was diagnosed with ROHHAD syndrome and has suffered ever since. ROHHAD is a life-threatening disease that affects the autonomic nervous system, which controls involuntary actions like breathing and your heartbeat, and the endocrine system. Currently, 10 year old Leah is one of less than 100 children who have been diagnosed with this syndrome. 

I will always be willing to support this charity as I am very close to Leah and her family. Please donate as it will help to find a cure for Leah and the other children world wide.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£1,285.00
Online
£1,285.00
Offline
£0.00

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