Your friends are fundraising. Don't miss out, opt in.

90 %
£900.00
raised of £1,000 target
by 19 supporters
Donate
Konrad Keller avatar
Konrad Keller

Cavernoma Alliance

Fundraising for Cavernoma Alliance UK

90 %
£900.00
raised of £1,000 target
by 19 supporters
Donate
  • Celebrating the birthday of Konrad Keller, 21 Jan 2017

Cavernoma Alliance UK

We raise awareness of cavernoma to improve the lives of people affected

Charity Registration No. 1114145

Story

In 2016 I was diagnosed with a 3cm Cavernoma (tumour) of the brain and more specifically on my left temporal lobe, an area responsible for comprehension, speech, recognition of words, personality and many more important skills. 

Living with a Cavernoma is like living with a ticking time
bomb. They can bleed at any time, 
causing full or partial paralysis, complete loss of communication/comprehension, stroke and death. Currently there is no treatment other than high risk Brain surgery, which is considered only as a last resort. Although many aren't even able to consider this option due to size, position and many other contributing factors.

Being diagnosed with a Cavernoma led to meeting many people suffering from this condition. The affects are truly devastating and very sad to witness. We need to understand more about this condition and your donations to the Cavernoma Alliance are greatly appreciated. 

Thank you so much.

Konrad 

Photos

1

Supporters

19