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Kris Stafferton avatar
Kris Stafferton

Kris's page

Running London Marathon for TSA for Tuberous Sclerosis Association because They support Faith condition

112 %
£1,685.00
raised of £1,500 target
by 67 supporters
Donate
  • Event: London Marathon 2018, 22 Apr 2018

Tuberous Sclerosis Association London Marathon Team 2018

Welcome to our London Marathon team page!

Charity Registration No. 1039549

Story

As a dad my job is to protect my children, even more so with my little girl then the boys. 

So when we were told at her second scan that she had a tumour in her heart and then told that she had TSC a condition we'd never heard of I was devastated.

Sitting in Kings College Hospital being told that she could have any degree of physical or mental disabilities. They couldn't tell us whether she'd walk, or if she'd even know who we are and they couldn't even say what the chances of her being an extreme case would be. I was devastated that there was nothing I could do to help or protect my babygirl before she was even here.

We are so very lucky Faith arrived and she has developed into a bouncing beautiful gymnast. So far we've had a growth removed from her skull and she has some white patches she calls her 'angel kisses'  

We know there are many who have such a harder time, one poor boy near us has daily fits. 

We however live under the threat, at anytime the condition can cause growths and we cant predict where or how our beautiful girl may be effected. She may still end up with serious health and mental issues and so we take each day as a blessing knowing its a gift others don't have.

Feeling completely powerless to protect my daughter from this I have to turn to other things - this marathon is my hope that karma will kick in or a bargain with the gods or the universe that if I run this and raise money to help those effected by this then maybe we'll continue to be lucky and maybe provide help to some others. 

So please dig deep and support this fat bloke killing himself running x

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