Kristin Froud

Walking for Kai

Fundraising for Joseph's Goal
raised of £500 target
by 8 supporters
Donations cannot currently be made to this page
Joseph's Goal

Verified by JustGiving

RCN 1151548


Thanks for taking the time to visit my JustGiving page.

I want to tell you a little story about a special little boy called Kai and hope you can help!  Mikaere Grant Hulance (Kai) was born last October with a Nonketotic Hyperglycinemia (NKH).  His parents Elly
and Sam are very good friends of mine and I want to help them drive awareness and help fund critical research for NKH. 

It’s a rare metabolic disease with no cure and limited treatment
options. Only 500 children live with the disease worldwide and the one and only NKH Charity - Joseph's Goal helps fund Professor Nick Greene at UCL/Great Ormond St Hospital who needs to raise £90,000 for research in order to provide any chance of finding a treatment or cure. He is developing gene therapy options to provide longer term treatment and so far, his research has had promising results.

So - next weekend – I am going to join my friends for part of their 78
mile walk around the Thames – and you can help!  Please consider sponsoring a mile on our trek or just donating a few quid for an extremely worthy cause!  If we manage to get all the miles sponsored – Sam (Kai’s dad) is going to dress up as a Bee - the unofficial symbol of NKH.

Visit BV's page here:

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About the charity

Joseph's Goal

Verified by JustGiving

RCN 1151548
Joseph Michael Kendrick is 14 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

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+ £37.50 Gift Aid
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