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Kristin Froud avatar
Kristin Froud

Walking for Kai

I am going to join my friends walking the Thames for Joseph's Goal because I want to raise awareness (& funds!) for NKH

36 %
£180.00
raised of £500 target
by 8 supporters
Donate

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

Thanks for taking the time to visit my JustGiving page.

I want to tell you a little story about a special little boy called Kai and hope you can help!  Mikaere Grant Hulance (Kai) was born last October with a Nonketotic Hyperglycinemia (NKH).  His parents Elly
and Sam are very good friends of mine and I want to help them drive awareness and help fund critical research for NKH. 

It’s a rare metabolic disease with no cure and limited treatment
options. Only 500 children live with the disease worldwide and the one and only NKH Charity - Joseph's Goal helps fund Professor Nick Greene at UCL/Great Ormond St Hospital who needs to raise £90,000 for research in order to provide any chance of finding a treatment or cure. He is developing gene therapy options to provide longer term treatment and so far, his research has had promising results.

So - next weekend – I am going to join my friends for part of their 78
mile walk around the Thames – and you can help!  Please consider sponsoring a mile on our trek or just donating a few quid for an extremely worthy cause!  If we manage to get all the miles sponsored – Sam (Kai’s dad) is going to dress up as a Bee - the unofficial symbol of NKH.

Visit BV's page here:  https://www.justgiving.com/fundraising/bazaarvoice-thames-walk

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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