Story
Thanks for taking the time to visit my JustGiving page.
This is the story behind it. Harry is a cheeky little chap in Lily's year at school.
On the 1st June 2013 we were told the results and our world fell apart. We were told it was serious and more tests were needed but it was suspected Harry has Muscular Dystrophy. Two months later following a muscle byopsy it was confirmed Harry has Duchenne Muscular Dystrophy. So now we know by his 10th birthday it is likely he will be in a wheel chair and his upper body will then begin to shut down due to this rare and painful condition leaving him locked inside his own body. As a muscular degenerative disease eventually his heart and lungs will fail, almost certainly before he is 30. The most difficult part - there is no cure, it will happen and it is 100% fatal.
There is a large amount of research currently taking place in the UK and abroad but as yet the only treatment is a steroid program to help manage the disease.
Therefore I am taking part in the London marathon' which is a 26mile run, which takes place on April 26th. The reason I am doing this is to raise money for muscular Dystrophy Campaign, the leading UK charity focused on muscular dystrophy. They are dedicated to funding world class research in order to find effective treatments and a cure and also improve the lives of adults and children. to find out more information please visit www.muscular-dystrophy.org
Help4Harry.
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