Lana Premadasa

Lana Runs A Marathon!

Fundraising for Marfan Trust
£770
raised of £700 target
Donations cannot currently be made to this page
Event: Amsterdam Marathon 2022, on 16 October 2022
Marfan Trust

Verified by JustGiving

RCN 1198847
We fund medical research to aid diagnosis & treatment

Story

I’m running my first marathon on the 16th October on behalf of The Marfan Trust. I’m running because like many people with Marfan Syndrome, my youngest sister lives every day in pain, and won’t ever be able to live a normal life. 

Despite being one of the most common connective tissue diseases in the UK, very few people have heard of Marfan Syndrome. Although everyone who has Marfans will have different symptoms, they are likely to have issues with their hearts, eyes and/or musculoskeletal systems. There is no cure, and even diagnosis can be a long process. You can read more about Marfans here

The Marfan Trust is the only charity in the UK that;

- Supports those with Marfan Syndrome & their families

- Undertakes medical research to enable better treatment of patients

- Provides educational information to raise awareness of Marfan Syndrome. 


Share this story

Help Lana Premadasa

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Marfan Trust

Verified by JustGiving

RCN 1198847
Marfan syndrome is a disorder of the body's connective tissue, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.

Donation summary

Total raised
£770.00
+ £137.50 Gift Aid
Online donations
£770.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.