Over the August Bank Holiday weekend, we will be climbing the 3 peaks (Ben Nevis, Scafell Pike and Snowdon) in 24 hours, hiking day and night. We're challenging ourselves to this in order to raise money for the Campbell Burns charity on behalf of our family and most importantly, in honour of a very special little lady...Georgiana Bonnie Smith.

We thank you all for any support and donation that you make to this amazing cause. We will also be updating this page along the way with our training ahead of such a huge task!

Have a read of our story below as to what we're doing this for...

Our beautiful niece and god daughter, Georgiana, was diagnosed with a very rare, life threating metabolic disease at the age of 2 weeks.  The disease is called Glutartic Aciduria type one. The diagnosis shook the family.  The rarity and seriousness of the disease meant her life and her parents life as they knew would change forever. Georgiana’s loved ones had to become experts in her condition, nurse her and learn how to manage this disease overnight.  

Georgiana's mum, Hayley, wanted to say a few words:

"Georgiana’s metabolic condition is complex. Common childhood illness like coughs and colds could quickly turn fatal for her and she needed a strict low protein high calorie diet to improve her chances of both surviving her early years without fatality or brain damage.

Not only are you now living in constant fear for your child’s life you are plummeted into sudden financial hardship. A baby with such complex needs has to be at home and cared for by parents.  Our income went from two full wages to one. Your world becomes smaller and smaller and times become harder in so many ways. Money and budgeting became a necessity and, for years, there was no room for non-essential spending.

We found the Campbell Burns Charity and started to not feel
so alone. Campbell Burns was a little boy whom sadly died from his metabolic disease and the charity is ran by his mum and dad for children and parents with rare disease like Georgiana and Campbell.

Over the years they have supported us in so many ways, from grants for family day trips, money to help pay for lengthy and unexpected hospital stays, and support for the purchase of adapted equipment that caters to Georgiana’s unique needs. To some this type of expense would not necessarily be a problem but for others, in the rare disease community, it makes all the difference!

They continue to support families through the pandemic, when times have really been tough and I hope people donate to this small but worthy Charity that touches so many people’s lives in the rare disease community."

Thank you for taking the time to read ours, Hayley's and Georgiana's story, and of course, we are so thankful of any support you can give us in fundraising for such a wonderful charity. 

Lots of love,

Fraser & Jess x