I am running the GNR to fund research into Alpers' syndrome!

Laura Smith is raising money for Ryan Stanford Appeal
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Great North Run 2021 · 12 September 2021 ·

The charity is raising money to fund medical research into Alper's Syndrome - a very rare, terminal condition generally found in young children

Story

Hello!

This September I will be running my 2nd half marathon to raise money for the Ryan Stanford Appeal. This wonderful charity funds research into understanding the causes of Alpers' syndrome, a devastating, fatal mitochondrial disease which involves severe, uncontrollable epilepsy and a loss of developmental milestones in children. 

As many of you will know, my current PhD research has been funded by the Ryan Stanford Appeal for the past 3 years. It is essential future research can continue to help understand the causes of disease and to potentially identify targets for therapies to help stop the inevitable, progressive neurodegeneration.

All your donations, however big or small, will be extremely appreciated by the many families who have sadly lost their children to Alpers' syndrome including Ryan Stanford's. I will be running for you!

Thank you for all your donations in advance!

Laura x

(Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.)

Donation summary

Total
£893.00
+ £115.25 Gift Aid
Online
£893.00
Offline
£0.00

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