The month of June is CDKL5 Awareness Month and we would love to have you join our team, Team SkylarStrong. Join us as we fundraise to help the IFCR (International Foundation for CDKL5 Research) Move CDKL5 Forward!

Our daughter, Skylar, is a determined, energetic, smiley little girl.  From the outside looking in, one might never guess all of the struggles that our perfect little girl has endured. At 20 months old, she has had literally hundreds of seizures. She has had more hospital stays and procedures than most of us in our lives and her days are often filled with therapies and doctors appointments. Through it all, this girl smiles and bounces back. Our goal is to see Skylar continue living her best life possible. Research is vital to hopefully seeing a cure one day, and every dollar raised will help not only Skylar, but all other CDKL5 warriors! 

It's easy to join us! If you don't want to keep track of miles, you can make a donation right here on my page. A suggestion is $30, which is $1 a day throughout the month of June.  Or, you can get out and MOVE in June!  For any walkers, runners, bikers, etc. you can keep track of your miles and think about donating $1 per mile, or more! Please post your activities on social media with the hashtag #CDKL5Forward to help spread awareness! The IFCR has a goal of 5,000 miles moved and $50,000 raised for CDKL5 this June and it will take all of us to get there!

Whatever amount you donate, large or small, please know that we appreciate your generosity! Everything you need to know including links for a printable mileage tracker, event shirt information, and the mileage submission form is at CDKL5.COM. The top 10 fundraising Teams will be featured in real time on CDKL5.COM and at the end of the month those top 10 Team Captains will win a prize! From the bottom of our hearts, THANK YOU for supporting Team SkylarStrong and helping to Move CDKL5 Forward!